Our very sweet friend, Lacey (Jaxson’s Mom), sent us this beautiful blanket!
It is so pretty! Something new for Bella to hold onto. :)
And it’s butterflies! So thoughtful, truly, to remember that about our girl. Can you see the edging? It is so lovely – thank you. I absolutely love it. Look how big it is – and it’s folded in half. Thank you Lacey. We appreciate it truly!
Our CT scan came back with expected results – she has a very small head for her age. Let’s be honest, while she’s 25% on the DS chart, she’s no where near the curve on the “regular” chart. She has fluid in her skull and a small brain, findings consistent with DS. But no masses and no bony abnormalities. The next step is to talk with neuro ophthalmology – did you even know there was such a sub-specialty? I am now clinging to the hope that it’s a medication thing and it will go away.
She continues to heal from her surgery. The site of the incision doesn’t look very good. It’s still pretty red and looks pretty angry. Normally, she heals so quickly, but not right now. She’s on three pretty strong antibiotics, so good nutrition and time is all they can do at this point.