Poor Bella. One of the effects ( I guess the word is) of DS is that it’s hard to sedate these kids. Bella has been on fentanyl and Versed for so long that their effectiveness is limited. They don’t want to paralyze her (norm trach protocol till that wound heals), because they can’t properly sedate her – and it’s cruel to be paralyzed if you aren’t sedated.
So she is receiving a lot of PRN meds. The doctor is starting Methadone in addition to the others. We’ll see. I wish I could take away this pain from her.
My doctor gave me Erma Bombeck’s, “At Wit’s End For Chosen Mothers.” I thought it was sweet of him.