Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Thursday, May 28, 2009


may 28 a 001

  Our sweet Child Life Specialist made a point of allowing me to hold Bella today.  I have to admit that I love that, but I’m not sure how much she enjoyed it today.  I think she is still hurting – her tummy is still pretty yucky.

She tolerated her pedialyte at a rate of 5cc’s an hour over night and then today.  But Pedi surg. is not comfortable with her eating yet.  So she has been increased to 10 cc’s an hour and they will continue to check residuals (if there is anything left in her tummy).  The good news is that she can start using her tummy for meds, so sildenadil and bostenan can come back aboard.  Yeah – we’ll be able to start weaning the Nitric hopefully tomorrow.

may 28 016

Look at the ceiling in this picture!  Isn’t that fun?  She has a projector that projects some brightly colored images on the ceiling.  It is perfect for Bella who stares at the ceiling all day.may 28 017





Suctioning her trach isn’t that hard.  I’m just amazed at how often she needs it done.


jturpin said...

I can't wait to see her this weekend to see all the progress she has made! :)

Lacey said...

She looks so good, she doesn't even look sick anymore, lets get that nitric off and get home. I know tummy issues can be long and frustrating though, but its a great sign that she is tolerating pedialyte.
Kiss that cute baby for me and Jax!!

Cammie Heflin said...

I love seeing her beautiful face!

Heather said...

She does look good my friend.Really good.Prayers for more good days ahead.I know they are waiting.Right around the corner.And another common toy.First the Grouchy Ladybug and now the projector.I haven't had the opportunity to use it much inpatient.Our ceilings aren't the best there.But will try at home.Will surely be a hit with Miss Zoey.Love to you all.