Bella continues to do well. She is more sleepy today. At one point she was getting agitated, so they gave her a little PRN sedation, but no paralytic. She continues to cooperate with the vent. They are slowly weaning on the nitric. We are down to 10 and believe it or not, we are sating in the 90s! Pulmonary ordered another ECHO. They would really like to get a number for her PH.
Brother Geddie, our friend and neighbor, stopped by today. He is doing a month rotation here in the NICU as the Attending. It was really kind of him to make it in here and check on us. I appreciate it! I was able to show off our cute girl and how well she is doing. :) Thanks Gwynn!
Let’s see, what else? We went back up on her Lasix drip. Her foley was removed. She continues on a PEEP of 9 and FIO2 of 60%. PICC line is being scheduled. Our surgeries are a maybe for next week.
I overheard a conversation today that I was so grateful I was not the mother on the other end of the phone. The doctor had to call and ask about doing one of two things. Either placing a trach or letting the child who is developmentally delayed just go home and be made comfortable. Ouch! That poor Mama. I wanted to reach through the phone and hug her. What a huge decision to make on the phone. Poor lady. Now I know why the doctor was so surprised when I sat down and frankly talked to him about a long term plan and if a trach was in our future. At least they know where I stand. I feel horrible for that family. The nurse said they don’t push things like long term procedures and DNRs. They try to ride things as long as possible before they have to do that. Today Bella is having a good day. Today that little angel across the hall of the ICU isn’t. I pray that they will both be blessed.
I'm so glad she continues to do well. I hate it when you have neighbors that don't do well, it all hits home. All that sweet little angel needed is time and I think she will continue to get better. Hugs from me and Jax
I'm glad Bella is having a good day. Good day for Bella good day for Momma... I just pulled out Elder Wirthlins quote... "consider the butterfly. Wrapped tightly in its cocoon, the developing chrysalis must struggle with all its might to break its confinement. The butterfly might think, "Why must I suffer so? Why cannot I simply, in the twinkling of an eye, become a butterfly?" such thoughts would be contrary to the Creator's design. The struggle to break out of the cocoon develops the butterfly so it can fly. Without that adversity, the butterfly would never have the strength to achieve its destiny. It would never develop the strength to become something extraordinary."
It made me think of all those who are watching and waiting for the butterfly to emerge and how their lives are also affected by her struggle. Greater faith and compasion as well as love and gratitude for the simple things are manifest in those who witness the struggle and they are never the same either. Love you! Krystal
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