Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Friday, May 22, 2009

A glimmer…..and an oddity

Just a quick note

It’s Friday, so the Attendings are rounding with each other as they pass the torch for the weekend.  Dr. Stein told me later that one of the Attendings remembers having a patient with DS that had the same eyes!  It was related to Methadone.  So the question, are we on too much or not enough?  Regardless…there’s hope!  Yeah!  Hopefully, as we wean from our narcotics, our baby will come back to us.

Dr. Stein, who could have been MY pediatrician – he has been practicing medicine a long time - says that he has NEVER seen a child go in for a fundoplication and develop the complications that Bella did.  They treat her so delicately here because she is so very delicate.  This is not the first time I’ve been told she’s a medical anomaly.  The surgeon that did Bella’s fundo came by to apologize.  That was very kind.  He didn’t need to do that.  He said that he doesn’t know what happened.  It was very routine.  They didn’t stretch anything.  Oh well, it just happened.  She is doing well now.  I am grateful.

1 comment:

Heather said...

Medical anomaly?Miracle if you ask me.I have one of those myself.Blessed we are for sure.Teaching us lessons in hope and a bigger plan.Listen to the song "Wonder" by Natalie Merchant.She wrote that for her friend who worked with children with special needs.So fitting for Miss Bella and all the other medical anomalies,I mean miracles,out there.Prayers for a peaceful weekend for you all.