Today the attending wanted Bella to have another vec holiday. Just enough to see how long it would take her to start twitching. So far we are at 2 hours. It’s supposed to have a half life of one hour, but it depends on how long you have been on it.
But consequently, she is taking longer to recover from her breathing treatments and bag and suction.
Her central line won’t pull back. What that means is that it’s not totally blocked – they can flush it (put stuff in), but nothing will come back out. So they have given her some medicine to try and break down the junk that is accumulating at the end of the catheter. It’s like a door – the door will open, but when they try to pull back, the door closes. They have to try and get this line working.
Yesterday the social worker and then later the Clinical Care Nurse came and spoke to me about the trach. I now have my trach book. I have lots of material to read. I have found others online that are living with this every day. My hope is that I can get used to it. We’ll just have to accept our new reality and move forward. Bella will really need to be protected from germs. Pretty much she will live in the living room. There will be no church and very few, if any, social outtings. But if it gives her body the support it needs so it can grow and she can heal, then good. Her quality of life will be better at home than here. She is receiving excellent care, but everyone deserves to go home and live with those who love you.
And as a memory for myself – this is my chair. Where I spend all of my day: