Bella had a pretty good morning. Pulmonary says that her heart is fixed so she should be sating above 90, so add more Nitric and wean on the O2.
Her albumin and potassium are a little low. So as I left for lunch, her albumin was starting. I came back to her doctor bagging her and asking for atropine to be brought to the bedside. I found out she was having a diaper change and bradied. She did not code, but she thought blue and marbled sounded like a good idea. Her x-ray shows a pleural effusion in the upper right lobe. (The sad thing is that I can read the x-ray myself. The things we learn in this journey called motherhood.) She is a very sick little girl. Two adjectives that people use all the time to describe Bella are sensitive and fragile. The ICU team has decided that weaning on the O2 is not a good idea right now. She is on some high pressure and 80% oxygen (down from her little episode).
Then she had a brady and desat to 54 during an IPV treatment. She used to love those – not any more. Fortunately, she is recovering from these episodes. She really does not like to be touched these days.
Results from the ECHO – pretty much what we thought yesterday, heart is functional, valves are competent, her pressures are a little worse – but still just good ole severe pulmonary hypertension :)
Signs you have been in the hospital too long:
The new RT asks if you work here.
The x-ray tech knows your baby’s nickname.
The rotating volunteers in the Ronald McDonald House recognize you.
You are calling doctors by their first name.