What an afternoon – Bella is not a fan of the vent. Period.
It took a while to find the right level of sedation to keep her comfortable. Lots of people. Lots of opinions. One stubborn little girl.
Then in the middle of all of that, ICU gets a new admission from the ER. A little girl with diabetes and viral symptoms. She has a fever and has been vomiting – and where do they choose to put this sick little girl? Right next to my baby. Mama was not happy. Mama called the doctor and expressed her concerns (least you worry – outside the hearing of the little girl). Bell’s immune system is not the strongest on the block. We do not want any virus. The littlest thing makes her very ill – and we aren’t in a good starting place. Fortunately, our doctors agreed. So as soon as Bell got comfortable, she was moved to a private room. Ugh. Moving a patient on a vent with more than 6 pumps is not an easy task, but I feel safer now.
I sit here all day and talk with nurses, RTs, doctors, and PAs. I question. I probe. I seek more information and greater understanding. And I get a lot of “I don’t know.” “I can’t tell you the answer to that one.” “That’s up to Bella'.” When we were here for her heart, I got a lot of “everything will be better after her repair.” I miss the positive tone, even if it was wrong.
Oh well, realism is important. “And thus it is.”