This is fun – Bella is doing well. I did all of her wound care today. (from her emergency surgery – they just left it open to drain, it’s finally healing) I cleaned her g-tube site and did her trach care. I gave her a bath and put her hair up in piggie tails. I held her in the rocking chair. She fell asleep in my arms and took a nap – wonderful! She did OT. She really likes lollipops and is still uncertain with the binkie. The doctor turned the Nitric down to 1. She is sating beautifully. He said to order the home vent on Monday. We are only looking at another two or three weeks – assuming the other shoe doesn’t drop (cringing while crossing my fingers and all of my toes). And I think I may have found a home health agency.
This is the doll that Juli and Lizzy made yesterday. Juli is so kind to think of all of these activities for my girls! And then Bella – who now ALWAYS has her fingers near her mouth! :)
Me rocking Bel. She fell asleep right after this. And then this picture!! I know she is feeling better because she wants to hold hands with everyone.
For the fun of it, we did OT in the bouncy chair. Lots of new experiences for Bella.
And lastly, a short video of Bella’s suck – a little bit different. Too cute! The OT had heard about a suck like this, but never seen it. She only sucks with her top lip and tongue, not her lower lip.