Sweet Bella. Her doctor had a talk with her today. Maybe it will help. The gains we made when her fever spiked are gone. Oh well. She is bradying more often. The doctor wants to keep her up here in PCU as long as possible. They keep working with the nursing staff to make it more like the ICU – vitals more often, that kind of thing. He did tell me that she isn’t going anywhere (home) anytime soon. We have to go slow and let Bella dictate the path. If we push her too much, she’ll go backwards.
Jason and I have our trach care class today where we will get formal instruction on all kinds of things. It is one more requirement before going home.
My body is letting me know that things have gone on for long enough now. I am tired – on every level. Our sweet Child Life Specialist dropped by to see Bella and got me talking. Poor thing. I teased her - I thought you were a Child Life specialist. She is really kind. She asked if I wanted to speak to the chaplain or if we had our own Pastor coming up. We’ll get through.
Fun pictures from yesterday by Sammi, my photographer: