Little Bella has captured the hearts of our family and everyone that meets her. We want to share her story with all.

Friday, June 5, 2009


Lizzy is my companion today.june 5th 005 june 5th 006

Our trach class is completed.  More and more items are getting checked off from our Discharge To-do List.  I just wish that Bella would sign off on the plan.  :)

imageTuesday the vendor is coming to help us order a Kid Kart.   It is a stroller and a wheelchair combined.  There is a place for the ventilator and the oxygen tank.  Plus it will have the trunk and head support she’ll need.

She’s had a pretty good day.  No major desats or bradies.  Not too tachy.  I was feeling pretty good until the doc says that she is a critically ill child who would be in ICU if she was anywhere but here.  (He was talking to a PA, not me.)  Oh well.

Her tummy is a little distended.  We checked her residuals (what’s left in her belly) and it was way too much and looked like straight milk.  So her feedings were stopped for a while.  We re-checked and she had resumed digesting – good.  So her feeds have resumed and they will watch it closely.  Hopefully nothing.

Here’s hoping for a nice, quiet weekend!


Junior said...

Continuing to keep Arabella in our prayers

My name is Sarah said...

Oh I love the piggy tails. She looks like she is totally in control to me.

Lacey said...

That looks just like Jax stroller that we are impatiently waiting for. Praying for a quiet weekend.

Heather said...

Love the piggy tails as well!Nice to be checking things off on the to do list as that means one step closer to home.Keep repeated that mantra:One step closer to home,One step closer to home .....over and over.Or you can adopt our adopted mantra,yes another one:"Keep Calm and Carry on"We have it actually in posters framed in our house as well as soon to arrive tshirts for the little Miss and I.Praying for an uneventful weekend.

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