So many wonderful things to share!
1st – The attending tried a new drug, pintobaritol – and it worked!!! She only required two doses and she was totally out. Good bit of info to keep in the back of my brain for later. It makes her BP go pretty low, but she is totally out.
2nd – The bronch went so well. She has the most beautiful bronchia I have ever seen! They were glisten-y and white. The human body, God’s beautiful creation, is a wonder to me.
3rd – She was fine with them turning the PEEP down to 5 – no trouble whatsoever!!! :) Translation – no malasia!
4th – Dr. Mallory, the expert here on Pulmonary Hypertension, was recalling how very sick she was when she came in. He said, “It’s like God knows who she is and loves her.” Yeah, it’s like that. He called her scope a miracle.
5th – She has reserve. I have been told for months that she has no reserve. She has some now! :) :)
6th – Dr. Mallory would like to try some trach trials. (Dr. McPherson isn’t going to be happy.) I am thrilled!
The RT told me earlier today that when she is sleeping, she doesn’t over breathe the vent – translation – she only breathes when the machine tells her to, but when she’s awake, she has spontaneous breathes. So, she is looking more and more like a very good candidate for vent at night and humidified collar during the day (in time).
7th – Dr. Mallory said that she is the perfect example of a DS baby – how they have to get both the heart and the lungs working correctly.
I am so thrilled!! She is doing so well. I have alternated between the happy dance, excited jumping, and tears. This is so amazing to me. Last night I was talking to two of the PAs. We were talking about how well she is doing. (They told me they had orders for her transfer back to ICU already written which they kept in the back of her binder – and they threw them away yesterday!) I was recalling how badly she was doing – looking at caskets, planning the funeral, having “the talk.” And now all of this. I got to thinking. I must have remembered it all wrong. She couldn’t have been that bad, so I went back and looked. Yes, yes, she was. I am so grateful that she is here and doing so very well. I am grateful for miracles. I am grateful that she was given the time she needed. I am grateful! I thank thee Father. I thank thee for Bella.
Smiling as the sedation starts to wear off
Such great news!! I am so happy she has continued to improve so well! Yea!
Woo HOO! Yeah Arabella what an angel from God you are!
That is great news. I am praising the Lord for this great information. Only HE could have constructed what is going on her precious little body. I will continue praying for her.
"Everything is possible .. the possible just take a little longer."
Bella is a true miracle.She continues to show us all the way.To remain faithful in God's plan,even and most especially when it is difficult to see that plan with clarity.
So proud of you Bella."Disneyland",here we come!!
I am so doing the happy dance right now. Another one of our miracle babies, determined to fight.
I can't believe they gave her pentobarb. Thats what they gave Jax to put him in his medically induced coma. Its a very strong drug.
Such wonderful news, Praise the Lord.
WAHOOOO! I am so glad and thankful for such wonderful news! I am so excited to meet her on the 10th!
Oh such wonderful news Shelly!!! This is Joyce. Sorry I have not commented for a while. We have been traveling and I am hesitant to log in on hotel computers so we have just been reading to keep up with our favorite kiddos.
I truly can appreciate how you can be doing the happy dance and have tears all at the same time. I pray the days ahead procede in the same manner. Being off that vent during the day sure would be the best way to go home. We found it takes just one doc who is willing to risk just a little and it seems you have found one. I hope it is possible for Bella and you. Hugs to all of you.
Thank you for sharing your miracles with all of us.
What wonderful miracles! Bella is a miracle and so is her family. I'm so happy for the good news and all the wonderful days that are a head of you. Happy Day! I love the photo of her sweet smile. Love Krystal
What a miracle!! You have all been in our prayers, and He does indeed hear and answer prayers, in His time.
Prayers are an amazing thing...prayers are answered and Heavenly Father is listening. He loves you and He loves sweet Bella! so glad things are going well...tears of joy for all of you today!
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