So many wonderful things to share!
1st – The attending tried a new drug, pintobaritol – and it worked!!! She only required two doses and she was totally out. Good bit of info to keep in the back of my brain for later. It makes her BP go pretty low, but she is totally out.
2nd – The bronch went so well. She has the most beautiful bronchia I have ever seen! They were glisten-y and white. The human body, God’s beautiful creation, is a wonder to me.
3rd – She was fine with them turning the PEEP down to 5 – no trouble whatsoever!!! :) Translation – no malasia!
4th – Dr. Mallory, the expert here on Pulmonary Hypertension, was recalling how very sick she was when she came in. He said, “It’s like God knows who she is and loves her.” Yeah, it’s like that. He called her scope a miracle.
5th – She has reserve. I have been told for months that she has no reserve. She has some now! :) :)
6th – Dr. Mallory would like to try some trach trials. (Dr. McPherson isn’t going to be happy.) I am thrilled!
The RT told me earlier today that when she is sleeping, she doesn’t over breathe the vent – translation – she only breathes when the machine tells her to, but when she’s awake, she has spontaneous breathes. So, she is looking more and more like a very good candidate for vent at night and humidified collar during the day (in time).
7th – Dr. Mallory said that she is the perfect example of a DS baby – how they have to get both the heart and the lungs working correctly.
I am so thrilled!! She is doing so well. I have alternated between the happy dance, excited jumping, and tears. This is so amazing to me. Last night I was talking to two of the PAs. We were talking about how well she is doing. (They told me they had orders for her transfer back to ICU already written which they kept in the back of her binder – and they threw them away yesterday!) I was recalling how badly she was doing – looking at caskets, planning the funeral, having “the talk.” And now all of this. I got to thinking. I must have remembered it all wrong. She couldn’t have been that bad, so I went back and looked. Yes, yes, she was. I am so grateful that she is here and doing so very well. I am grateful for miracles. I am grateful that she was given the time she needed. I am grateful! I thank thee Father. I thank thee for Bella.
Smiling as the sedation starts to wear off