What a wonderful couple of days! I think they should mildly sedate the parents whenever they do a procedure on their child – exhale! breathe. Yes, people do laugh at me here. :)
Here the RT is taking her off the vent. Then she just has a small flow of oxygen (30%) in the new blue tubing – but no pressure like a ventilator. Can you see her just thinking, “OK, ladybug, so long as you are here.”
Then about 15/20 minutes in, she started to cry and look at me with the “Mama, fix it!” eyes. Concerned. Worry. Her respiration rate got pretty high, but her heart rate stayed around the 140s, so the pulmonologist said to keep trying. Ugh. Worry. Concern. So I picked her up and held her and talked to her. And the sweet thing settled down. I told her stories about Lizzy’s dinner last night, about what her big sisters did yesterday in Utah, about her birthmother and how she would call her “popet” (probably misspelled). She settled right down and went to sleep. She managed for one hour. She did it! Her respiration rate is a little high, but she did it! Way to go little one!
So how Dr. Mallory does the wean from the vent (once we are home and things are going well) is this. He does the trach trials for one hour once a day. Then after a while, he lengthens the amount of time until one day we will be off the vent during the day. One day we will be off the vent totally. Yeah.