Thanks for all the prayers and fasting. It really does work.
What a wonderful day! Bella is doing fantastic! Her nitric has been weaned to 8.6 (it’s hard to calibrate and we were shooting for 9) and we are going to go down to 8 soon. Her O2 is down to 45. Her PT and OT went really well. Becca is here with me today. Another week like this and we might start talking about the H word(home)! My sister called last night and asked me how I was doing emotionally. Truthfully, I try to stay pretty level and positive, but how Bell is doing is how I am doing. So today I am higher than a kite! Way to go Bella. Keep it up baby!
PT – Can’t we talk about this?
I’m not sure we have EVER had numbers this good! This picture is right before we started to wean. Now her numbers are a little different, but still good.
Sleeping – she pulled that vent off at least a hundred times today
My companion, Becca, eating her lunch on the window sill. It must be a 13 year old thing. :) She likes to people watch out the window.
OT – Again, I have to sit up again? And now you are putting things in my mouth? Is nothing sacred?